The last stanza of Tennyson's "Ulysses" sums it up:
"Though much is taken, much abides; and though
We are not now that strength which in old days
Moved earth and heaven, that which we are, we are--
One equal temper of heroic hearts,
Made weak by time and fate, but strong in will
To strive, to seek, to find and not to yield."
We are not now that strength which in old days
Moved earth and heaven, that which we are, we are--
One equal temper of heroic hearts,
Made weak by time and fate, but strong in will
To strive, to seek, to find and not to yield."
A week of nights squared, just one day short of 50 days in the
hospital, is how long K spent at Hopkins. My wife, J, was there all save the 4
days (the four during our long planned trip to Disney when she called constantly for
updates and arrangement of care). Through the 49 days, the kids made do with my
time and attention for many an afternoon and evening. I can't say it was all
fun and easy, but there came a point when I kept saying "we, as a family have
invested so much, how can we walk away?" Nobody ever promised us a rose
garden. Our kids, at this age, seem to know only care vs. don't care, and the
thought of walking away isn't one I can see them considering. They were
disappointed with every set back. They wanted K and J back home.
"Maybe she will get out tomorrow or in just a couple of days."
became the mantra for all even when it was harder to believe.
Still through it all, I think there was a wear down of body
and emotion, but not of will. I could see it in J, and I felt it in me. As for
the kids, I don't know that they could recognize it. Their behavior after every
visit spoke to the emotional costs though. Those were some difficult evenings,
but through it all they came out seeing her again and taking pride in being with
her and making her smile. They take pride in their bonds with her, their little
sister.
In the end, it seems our resilience emerges tougher. Do it
all again? I don't know if the same decisions would be made knowing all of the
end costs, but I also can't think of a single spot where hindsight would lead me
to a different pick. I've always been stubborn, and yielding on such things
seems unnatural. I say all of this not 24 hours after her return home with my MS fatigued self
having a cold and J being run down. The first steps of any journey may be the
hardest, but heck if the last ones aren't the most draining as the push towards
the goal is realized.
What's left?
Just us




